Guestbook Submissions « Coping with the Loss of Child. Recovering From the Death of a Child

I couldn’t put it down. I found myself going though a kaleidescope of emotions as I read your journey of Angela’s life and death. It moved me to realize the challenges of those who quietly fight for life each day, while others take it for granted.” -Jennifer

“Your efforts to honor your beautiful daughter are touching many lives.” -Cynthia

“I read your book in three nights and cried every night I was reading. I too share in the loss of someone so dear to CF…my very best friend whom I had known since I was five. Charlie, died while awaiting a double lung transplant at the age of 38. Reading your story of the many long days and nights spent in the ICU “family room” brought back many memories…many days where family and friends would wait around the clock, sleeping on the floor and on chairs of the ICU waiting room which people had started to refer to as Camp Charlie…waiting with hope that lungs would arrive in time, waiting for our miracle. Thank you for sharing your story so that those of us who never got a chance to meet Angela to love her through your book and we can now hold her close in our hearts too.” -Kathryn

“Somehow it is a little easier to go through knowing someone else has gone through it too.” -Ruth

“Your love for Angie shines through on every page.” -LeeAnn

“Not just those afflicted with CF or [with CF] within their families, EVERYONE should read this book! The love of this family and the courage of one heck of a fighter to move beyond the limitations. I feel like I know Angie and I would have loved to be an older person with CF mentoring her through life. Now I have been mentored by her story of zest for life and love. Her story inspired me in a way, to keep shooting for the stars!

We bought many copies of the book as it is a great educational tool to help people understand that CF is an invisible illness. When you look at the average CF person, including myself, we do not look sick. However, the maintenance required to “look” and “feel” as good as we do is constant and energy draining, yet we do it because we want to live! I will continue fighting where Angie left off!

The love between [Angie and Don] reminds me of my relationship with my own father and how lucky I am and to never take time for granted. I read the book in two days, I could not put it down, and even read through a few meals. Angie and [my] stories are similar in many ways and it makes me sad to lose a sister to this illness, yet I know to keep preserving, have a good attitude and love others along the way. Thank you for sharing your heart, Don!” -Kelly, adult with cystic fibrosis

“The love and devotion of you and your wife for Angela was apparent. What a beautiful person–inside and out. It was enlightening to hear about the waiting room experience. [Nurses] get so busy on the unit that not enough thought is given to that “worry room,” as you so aptly coined it. There is forever the struggle to balance the emotional needs with the tasks that must be carried out. How could Angela not be pleased and honored with the projects you have initiated in her memory? You are an inspiration.” -Sue, RN

“Your book is amazing, and of course, heartbreaking. I want my family members and close friends to read it – so they can really know what we have gone through in the last 17 years, and what kind of special people CF parents are, and what extraordinary people CF patients are. There are many similarities in your book that are like my story (so far). Your book has renewed my life, and I am once again ready to fight this awful disease with [my children]. When things are going well, you don’t really dwell on CF, and you start getting kind of lazy and not doing that last Neb because it’s late. Well, no more of that! I have fought for 17 years and will continue until God says “that’s it!”" -Terri, mother of two children with CF

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But such a tide as moving seems asleep, too full for sound and foam, when that which drew from out the boundless deep, turns home again.
— Alfred Tennyson

For everything there is a season…a time to break down and a time to build up; a time to weep and a time to laugh; a time to mourn and a time to dance.
— Ecclesiastes 3:1-4

Grieve not, nor speak of me with tears, but laugh and talk of me as if I were beside you…..I loved you so –’twas Heaven here with you.
— Author Unknown

Love...bears all things, believes all things, hopes all things, endures all things. Love never ends.
— 1 Corinthians 13:7-8

Shed no tears of sorrow for I am not gone. Believe in your heart I will be there. Believe in your heart and I am there.
— Author Unknown

Read this book if you want to be reminded of the strength of the human spirit.
— Reader

And can it be that in a world so full and busy; the loss of one weak creature makes a void in any heart so wide and deep that nothing but the width and depth of eternity can fill it up.
— Charles Dickens

People seldom see the halting and painful steps by which the most insignificant success is achieved.
— Anne Sullivan

A heartbreaking story of a grieving father's devotion to his daughter. I'm sure this book will be of help to other families facing the same trials.
— Judge's comments, Benjamin Franklin Book Awards

Courage is the first of human qualities because it is the quality which guarantees all others.
— Winston Churchill

Should his heart break and the grief pour out, it would flow over the whole earth, it seems, and yet, no one sees it.
— Anton Chekhov

As you hold me close in memory, even though we are apart my spirit will live on, there within your heart, I am with you always.
— Author Unknown

I love thee. I love thee with a love that shall not die; till the sun grows cold and the stars grow old.
— William Shakespeare

I saw the angel in the marble and carved until I set him free.
— Michelangelo

They that love beyond the worlds cannot be separated by it. Death is but crossing the world, as friends do the seas; they live in one another still.
— William Penn

If tears could build a stairway and memories a lane I'd walk right up to Heaven and bring you home again.
— Author Unknown

Love takes up where knowledge leaves off.
— Sir Thomas Aquinas

If you have built castles in the air, your work need not be lost; there is where they should be. Now put foundations under them.
— Henry David Thoreau

The great use of life is to spend it for something that will outlast it.
— William James

This book should be read not only by those dealing with illness or loss, but by anyone who wants a glimpse of a family demonstrating grace through adversity. Highly recommended.
— Amazon Reviewer

Into each life some rain must fall, some days be dark and dreary.
— Henry Wadsworth Longfellow

Always tell the truth. Then you don't have to remember anything.
— Mark Twain

A new part of my research has been stimulated by Don Warner's book.
— Dr. Warren Warwick, pioneering CF physician

It is not length of life, but depth of life.
— Ralph Waldo Emerson

Your book has renewed my life….
— Terri, mother of two children with CF

In prayer, you encounter God in the soft breeze, in the distress and joy of your neighbor and in the loneliness of your own heart.
— Henri Nouwen

The stories of past courage...can offer hope, they can provide inspiration. But they cannot supply courage itself. For this, each man must look into his own soul.
— John F. Kennedy

Be glad of life because it gives you the chance to love and to work and to play... and to look up at the stars.
— Henry Van Dyke

He who has a why to live can bear almost any how.
— Friedrich Nietzsche

Man, alone, has the power to transform his thoughts into physical reality; man, alone, can dream and make his dreams come true.
— Napoleon Hill

Love is the beauty of the soul.
— Saint Augustine